22q11.2 deletion syndrome, also known as DiGeorge syndrome or Velocardiofacial syndrome, is a rare genetic disorder caused by the partial deletion of genetic material on one copy of chromosome 22. This can result in a wide variety of health challenges. Experts at Lurie Children’s provide care and support for children with 22q deletion syndrome so that every child has the chance to reach their maximum potential. 

Our community includes patients and their families, providers and their families, and friends of all, who come together in support of each other. By participating in our fundraising efforts, you can make a significant impact in the lives of these children, ensuring they receive the specialized care and comprehensive support that they need as they navigate this complex condition. Help optimize the experience of our patients, advance research, and improve outcomes by joining our team.

Fundraising for the 22q Center is not just about raising money; it is also about building a network of strength and solidarity. Together, we raise awareness of 22q deletion syndrome. Join our group or perhaps start your own fundraiser during 22q Awareness Month (in November) or 22q at the Zoo (in May). Join us in making a difference with a contribution, no matter how big or small. 

$25 could help fund tickets for children and their families to attend our annual 22q at the Zoo event.

$50 could help provide Passports for the clinic day which includes visits to multiple specialists.

$100 could help support activities to keep children engaged and rewarded at office visits and before or after procedures.

$250 could help offset the costs of creating parent and caregiver education materials.

$500 could help us learn or share our patient and provider experiences at national gatherings.

You can also donate your time. If you are interested in additional opportunities to become involved in the 22q Team at Lurie, please email [email protected] with the subject line 22q Friends and Family.